PHOTOSHEALINGWORDS.ORG
Wednesday January 25, 2012
Luke 1:37 ... I fell strong :) ...
God's Healing Words Spoken Through His Word ... Amen!
Praying With Confidence
Lord … God …
These are the little
things that we can do in our life for others ; as a return for what all God
has done to all of us...
What We Believe – Trust
Jesus Christ,
Father God, give us ears to hear Your promptings to intercede and the
will to obey. Amen.
Amen
Chemotherapy Avastin (CDH) + Novocure (clinical trial
-UIC) + ProCure & Chemotherapy TMZ (ProCure CDH)
Praxis tasks, fine motor skills, and less word finding
abilities... Automatics, numbers, days, months, singing, dysfluency and
expressive language skills ... Sort , Common missing , Dizziness and
Coediting automatics opposites sequence
123/mon-tue-wed/jan-feb-mar etc…
Nothing Will Be Impossible!
Luke 1:37 For with God nothing shall be impossible.
... I fell strong :) ...
God's Healing Words Spoken Through His Word ... Amen!
Do not be afraid - I am with you! (Isaiah 43.1-5)
I am prayer for U ...Upholding you in the everlasting
arms of a God for whom all things are possible.
So ... sure 100% ....
Chicago
and Kerala -
Jan 15,
2012
by Jean Mathew
Photos
taken during 2010,11,12 with Bible Verses... You are allowed to take printout
for your personal purpose. If you are selling this copyrighted photography
with Bible Verses, Please give at-least 60% to S.T.E.C.I Chicago Parish as
offering for helping Ministries like RBC's Daily Bread, Wall photos are daily
Bible devotionals that I put to my photography with embedded Bible Verse; The
best of the snaps that I took that week/month ... Most of these quotes are
taken from devotionals like ...
|
Thanks,
Jean Mathew
Jean Mathew
 |
233 Hillandale Dr,
Bloomingdale, IL , 60108 Y!: jeanmathew6 Mail: jean.mathew@gmail.com Skype: jeanmathew060681 |
On Fri, Feb 3, 2012 at 9:49 PM, Jean Mathew <jean.mathew@gmail.com> wrote:
Wikipedia,
the free encyclopedia ...
Hi,
This is
happened for me on this Monday (1 Feb 2012), I just want to let you know on
this …The last October Seizure was partial but this time it was full. (Girish and
OFB call 911) – that is
....
Girish Help...
1:19
|
For I know that this shall
turn to my salvation through your prayer, and the supply of the Spirit of
Jesus Christ,
|
1:20
|
According to my earnest
expectation and my hope, that in nothing I shall be ashamed, but that with
all boldness, as always, so now also Christ shall be magnified in my body,
whether it be by life, or by death.
|
Thanks,
Jean
Amma…
Mr. Mathai Alex
Mrs. Kunjunjamma Alex
Mrs. Elsie Periaswamy.
Sudden Unexpected
Death in Epilepsy, or SUDEP…
is a term used when a person with epilepsy
suddenly dies, and the reason for the death results from unexplained respiratory failure
or cardiac
arrest after seizures. SUDEP is sometimes referred to as
"Sudden Unexplained Death in Epilepsy", as the cause of SUDEP is
unknown. Post
mortem examination usually reveals no abnormalities in
victims. Of those who die from SUDEP, it is most common in people who have
generalised tonic-clonic seizures, especially in young adults age 20-50. The
average age of those dying from SUDEP is estimated to be between 28–35 years,
and SUDEP very rarely occurs in children. The most important 'risk factors'
seem to be poor seizure control and seizures occurring during sleep.
Research has estimated that approximat
ely 50,000 people die each year in the USA from status epilepticus
(prolonged seizures), SUDEP, and other seizure-related causes. SUDEP accounts
for 8-17% of deaths in people with epilepsy[2].
Roughly 1 in 100 sufferers of severe epilepsy die of SUDEP every year[3].
For sufferers of mild idiopathic epilepsy (epilepsy of unknown cause), the
figure drops to 1 in 1,000 per year.
The non-profit organization Citizens
United for Research in Epilepsy (CURE) has led efforts in
granting research to prevent and find the cause of SUDEP
Sudden Unexpected Death in
Epilepsy
Sudden
unexpected death occurs in a small number of people who have epilepsy. People
most at risk are those with severe frequent seizures. Preventing seizures as
much as possible with treatment may reduce the risk of sudden death. A
support group may be helpful if you are suddenly bereaved by an unexpected
death of a loved-one.
|
What is sudden unexpected death in epilepsy?
Sudden Unexpected Death in Epilepsy (SUDEP) is a term
used when a person with epilepsy suddenly dies and the reason for the death is
not known. For example, it is not due to injury or to drowning following or
during a seizure, and it is not due to a prolonged and severe seizure (status
epilepticus).
What causes sudden unexpected death in epilepsy?
The cause is not known. If a post-mortem examination is
done on a person who dies of SUDEP, no abnormality is found to account for the
death. There are various theories as to why a person with epilepsy may die
suddenly. One theory is that a seizure may affect a part of the brain that
controls heart or breathing function, and so the heart and/or breathing just
stop during a seizure.
How common is sudden unexpected death in epilepsy?
The risk of SUDEP is small for most people with epilepsy.
It is estimated to cause about 500 deaths per year in the UK. This sounds a
lot; however, when you compare it to the number of people who have epilepsy, it
is quite rare.
Of those who die from SUDEP, it is most common in people who have generalised tonic-clonic seizures, especially in young adults. The most important 'risk factors' seem to be poor seizure control, and seizures occurring during sleep.
Note: epilepsy is common. About 1 in 30 people in the UK develops epilepsy at some stage. Most people with epilepsy have a normal lifespan and do not die of SUDEP.
Of those who die from SUDEP, it is most common in people who have generalised tonic-clonic seizures, especially in young adults. The most important 'risk factors' seem to be poor seizure control, and seizures occurring during sleep.
Note: epilepsy is common. About 1 in 30 people in the UK develops epilepsy at some stage. Most people with epilepsy have a normal lifespan and do not die of SUDEP.
In people with severe epilepsy (frequent and severe
tonic-clonic seizures), it is estimated that about 1 in 200 dies of SUDEP each
year.
In people with mild idiopathic epilepsy (epilepsy of
unknown cause), it is estimated that about 1 in 1000 dies of SUDEP each year.
In people who are in remission, the risk of SUDEP seems
to be negligible (very low). The term 'in remission' means that you have had
seizures in the past, but have none or very few at present. This is either
because of treatment, or because the epilepsy has settled down.
How can the risk be minimised?
If you have epilepsy, it may be possible to reduce the
small risk of dying from SUDEP by:
Preventing seizures as much as possible. This is usually
by medication. In some people, surgery is used to prevent seizures when
medication has not been successful in preventing seizures. However, in some
cases it is not possible to stop seizures fully. (See separate leaflet called 'Epilepsy - Treatments' for details.)
Being aware of the potential risk of night-time seizures.
Some people only have seizures at night when asleep (or have them more often at
night). As the risk of SUDEP is still present even for night-time seizures, if
possible, you should try to prevent these seizures as much as you can. This may
mean a review of medication. But again, in some people it is not possible to
prevent seizures fully.
Bereavement due to sudden unexpected death in epilepsy
The sudden death of a loved one for any reason (such as
due to SUDEP) is very upsetting and traumatic. If you have lost someone close
due to this condition, it may be best to talk it through with your GP, or with
the GP of the affected person. It is a tragic event where usually nothing could
have been done to prevent it from happening. Some people find that it helps to
get informat
Epilepsy Facts
Epilepsy affects over 3 million Americans of all ages –
more than multiple sclerosis, cerebral palsy, muscular dystrophy, and
Parkinson’s disease combined. Almost 500 new cases of epilepsy are diagnosed
every day in the United States. Epilepsy affects 50,000,000 people worldwide.
In two-thirds of patients diagnosed with epilepsy, the
cause is unknown.
Epilepsy can develop at any age and can be a result of
genetics, stroke, head injury, and many other factors.
In over thirty percent of patients, seizures cannot be
controlled with treatment. Uncontrolled seizures may lead to brain damage and
death. Many more have only partial control of their seizures.
The severe epilepsy syndromes of childhood can cause
developmental delay and brain damage, leading to a lifetime of dependency and
continually accruing costs—both medical and societal.
It is estimated that up to 50,000 deaths occur annually
in the U.S. from status epilepticus (prolonged seizures), Sudden Unexplained
Death in Epilepsy (SUDEP), and other seizure-related causes such as drowning
and other accidents.
The mortality rate among people with epilepsy is two to
three times higher than the general population and the risk of sudden death is
twenty-four times greater.
Recurring seizures are also a burden for those living
with brain tumors and other disorders such as cerebral palsy, mental
retardation, autism, Alzheimer’s disease, stroke, multiple sclerosis, tuberous
sclerosis, and a variety of genetic syndromes.
There is a strong association between epilepsy and depression:
more than one of every three persons with epilepsy will also be affected by
depression, and people with a history of depression have a higher risk of
developing epilepsy.
Historically, epilepsy research has been under-funded.
Federal dollars spent on research pale in comparison to those spent on other
diseases, many of which affect fewer people than epilepsy.
For many soldiers suffering traumatic brain injury on the
battlefield, epilepsy will be a long-term consequence.Brain surgery is a procedure to treat problems in the brain
and the surrounding structures.
Description
Before surgery, the hair on part of the scalp is shaved, and
the area is cleaned. The doctor makes a surgical cut through the scalp. The
location of this cut depends on where the problem in the brain is located.
The surgeon creates a hole in the skull and removes a piece,
called a bone flap.
If possible, the surgeon will make a smaller hole and insert
a tube with a light and camera on the end. This is called an endoscope. The
surgery will be done with tools placed through the endoscope. MRI or CT can
help guide the doctor to the proper place in the brain.
During surgery, your surgeon may:
· Clip off an aneurysm to prevent blood flow
· Remove a tumor or a piece of tumor for a biopsy
· Remove abnormal brain tissue
· Drain blood or an infection
The bone flap is usually replaced after surgery, using small
metal plates, sutures, or wires. The bone flap may not be put back if your
surgery involved a tumor or an infection, or if the brain was swollen. (This is
called a craniectomy.)
The time it takes for the surgery depends on the problem
being treated.
Why the Procedure Is Performed
Brain surgery may be done if you have:
· Brain tumor
· Bleeding (hemorrhage) in the brain
· Abnormal blood vessels in the brain (arteriovenous malformations;
AVM)
· Damage to tissues covering the brain (dura)
· Skull fracture
· Pressure in the brain after an injury or stroke
· Certain brain diseases (such as Parkinson’s disease) that may be
helped with an implanted electronic device
Risks
Risks for any anesthesia are:
· Reactions to medications
· Problems breathing
Possible risks of brain surgery are:
· Surgery on any one area may cause problems with speech, memory,
muscleweakness,
balance, vision, coordination, and other functions. These problems may last a
short while or they may not go away.
· Blood clot or bleeding in the brain
· Seizures
· Stroke
· Coma
· Infection in the brain, in the wound, or in the skull
· Brain swelling
Before the Procedure
Your doctor will examine you, and may order laboratory and
x-ray tests.
Always tell your doctor or nurse:
· If you could be pregnant
· What drugs you are taking, even drugs, supplements, vitamins, or
herbs you bought without a prescription
· If you have been drinking a lot of alcohol
· If you have allergies or reactions to medications or iodine
During the days before the surgery:
· You may be asked to stop taking aspirin, ibuprofen, warfarin (Coumadin),
and any other drugs that make it hard for your blood to clot.
· Ask your doctor which drugs you should still take on the day of
the surgery.
· Always try to stop smoking. Ask your doctor for help.
· Your doctor or nurse may ask you to wash your hair with a special
shampoo the night before surgery.
On the day of the surgery:
· You will usually be asked not to drink or eat anything for 8 to 12
hours before the surgery.
· Take the drugs your doctor told you to take with a small sip of
water.
· Your doctor or nurse will tell you when to arrive at the hospital.
After the Procedure
After surgery, you'll be closely monitored by your health
care team to make sure your brain is working properly. The doctor or nurse may
ask you questions, shine a light in your eyes, and ask you to do simple tasks.
You may need oxygen for a few days.
The head of your bed will be kept raised to help reduce
swelling of your face or head, which is normal.
Medicines will be given to relieve pain.
You will usually stay in the hospital for 3 to 7 days. You
may need physical therapy (rehabilitation).
Outlook (Prognosis)
How
well you do after brain surgery depends on the condition being treated, your
general health, which part of the brain is involved, and the specific type of
surgery
Feb 3 – Temodar
Feb 2 – ProtonCure
Chemotherapy
(Avatin) + novocure + ProtonCure (radiation therapy + Temodar – 4-5 week)
Jan
25 – novocure started
Jan 23: I went to the Proton Therapy Center and
completed the CT simulation, it will take about 10-12 business days for the
planning team to complete my treatment plan.
A member from the team will contact me when the plan is ready and will
schedule my treatment sessions. At this
point they anticipate it to start the week of February 1st. The proton therapy has been approved by my
insurance.
I
understand that you will be scheduling the times for my medications once I start
the Proton Therapy.
Will
you email me the medication name and the times I should take those
medications. I will be free tomorrow if
you want to contact me and I will try to have my friend Elsie be part of the
conversation with you. On Wednesday, Thursday, Friday, I am booked with
appointments, but I will be free on Saturday again.
Currently,
this is my medication schedule
6:30am DEXAMETHASONE
6:00
am FAMOTIDINE
7:00am
Keppra
6:30pm DEXAMETHASONE
7:00pm
Keppra
SULFAMETH/TMP DS TAB –
ONDANSETRON
TEMODAR
These 3 medications will be started during proton
therapy. How should I schedule these
medications with the above medications.
Jan
19: Saw Andria Baumgartner-
Speech Language Pathologist (CDH): Recommends skill therapy services- to focus
on fill in sentences for word recall, and increase expressive language skill.
She will fax you the notes from my visit. – Praxis tasks, buttoning, putting on
watches, and fine motor skills, and less word finding abilities. Activity work:
automatics, numbers, days, months, singing.
Goal: progressing and improvement and phoneme
cues, less dysfluency.
Plan: focus on automatics, fill in sentences for
work recall, breath support to show rate, and increase expressive language
skills.
Jan
18: Yesterday and today
morning have wheezing & difficulty breathing... I have seizure 17 Jan'11 -
last 5 min. I take Lorazepam 1 mg. Yesterday and today i try buttoning, putting
on watches, week right.
Jan
16: Met with Dr. Sweeney at
CDH ProtonCure. Mock session and marking the site for radiation therapy on Mon
23’ Jan for ProCure Proton Therapy. They are trying to get approval from my
insurance for the proton therapy. The financial advisor stated that all
information has been submitted to my insurance today (Jan 19th - Jocelin – 630-821-6384)
and it should take 1-2 weeks before I hear anything from them. My insurance is
out of network and they are trying to get approval for in network and that is
why it is taking time for approval.
Jan
18: I met Dr. Herbert
Engelhard, University of Illinois Hospital in Chicago and have been approved
trial case. NovoCure "Novo TTF" (TTF stands for "tumor-treating
fields"). NovoCure training session will be on Thursday January 26th. An
MRI will be done for the trial every 2 month at UIC.
Jan
12: Dr. Ayers office called
and I have set up an appointment to see him on Friday January 27th @ CDH. I
will have my next Avastin treatment at UIC on January 25th 2011. After I see
Dr. Ayers on the 27th Jay 2011, they will set up my Avastin treatment at CDH
Cancer Center.
3 Jan 2012 – subdural collection with reduced contrast enhancement
with focal areas of cavitations that also appear to decreased in size. These
effects may be due to the Avastin. Edema surrounding the surgical bed shows
interval worsening with increasing mass effect an adjacent structures. Concern
in raised that this increased edema may be producing the mass effect causing
pain on the adjacent dura as well as well as the worsening of the speech
difficulties…
MRI Report: 01/03/2012 , 12/01/2011 and dating back to
03/01/2008 ...
Multiple resections 19 Mar 2008, 19 Aug 2010 … Left front
parietal craniotomy
Glioblastoma 3rd and Astrocytoma 1st / 2nd Anaplastic
(Malignant, High Grade, III)
Now 3 cycles Avastin (8 Dec 2011)
Oct
2011: Start TEMODAR – 380 mg (5 days) - 3 months …
Aug 2011 : There was no recurrence of tumor for
these 2.5 years. Mar 2nd week’s MRI was clean and Jul 1st week’s MRI shows
recurrence. I am undergoing
awake-craniotomy with speech mapping to remove tumor and cyst that formed in my
left side of brain. Surgery is scheduled on 19th Aug 2011 at Provena Saint
Joseph Medical Center - Joliet.
On March 1st
2008 I was taken to UIC Medical
Center , Chicago with some seizure activity and syncopal episode and aphasia.
MRI shows roughly 2-3 cm mass in left front temporal /parietal lobe. I underwent surgical awake resection
craniotomy of the lesion on March 19th
2008. Pathology report showed grade III anaplastic asterocytoma (with a ki67 or
5-6%).
I took 4 cycles of 5 day radiation in May 2008 and
started Temodar (www.temodar.com) on Jun 2008 with 5 day/month with 180mg for 6 months and then
taper off to 140mg and then to 100mg and stopped the medication by May 2009. I
was put on Lyrica 75 mg night for 2 years and now I am off of this. I am taking
Keppra (www.keppraxr.com) 1750 BID for controlling my seizure due to
resection. Doctors are planning to taper off Keppra starting from March 2011
onwards; But I have to keep a minimum level of Keppra for a long time.
The latest MRI report taken on 10 Nov 2010 says that
there is no evidence of recurrence, status post left frontopariental craintomy
with underlying encephalomalacic changes, cystic change and gliosis without
change from previous studies (6 MRI’s compared starting from 29 May 2009). The
blood volume on the MRI perfusion study does not demonstrate any increased
vascularity that could be associated with tumor recurrence. Doctors will continue couple of MRI’s this
year and will stop monitoring my case.
I went to Speech Therapy for 3 months after my surgery
and Occupational therapy for 2 months ; Experiencing speech break if I am
nervous or tired or when trying to say a new word that I did not say in these 3
years. I experience occasional numbness in the 1st and 2nd
finger of my right hand if I did not get enough rest. Also a chance of getting
partial seizure if I am missing a dose of my seizure medication; And I used to
carry seizure breakthrough medication always with me. Health wise I am doing
better now; doing regular walking and taking healthy diet with lots of
antioxidants in my diet. I started by driving by March 2009 and enjoying the
climate at Chicago.
Dec 2011 - Diagnosis:
-
To:
"SOMA SINHA ROY" <somasr5@hotmail.com>
Hello,
Just wanted to give you some info regarding another neurooncologist, as you have requested, especially since Dr. Villano is leaving UIC.
I would highly recommend Dr. Nicholas Vick and his group, including Dr. Ryan Merrell and Dr. Nina Paleologos. Their office contact info is 847-570-1808 (phone), and 847-733-5137 (fax). They are located in Evanston, at NorthShore Hospital . Hope this helps.
Best,
Soma Sinha Roy, MD
Hello,
Just wanted to give you some info regarding another neurooncologist, as you have requested, especially since Dr. Villano is leaving UIC.
I would highly recommend Dr. Nicholas Vick and his group, including Dr. Ryan Merrell and Dr. Nina Paleologos. Their office contact info is 847-570-1808 (phone), and 847-733-5137 (fax). They are located in Evanston, at NorthShore Hospital . Hope this helps.
Best,
Soma Sinha Roy, MD
Dear
Jean,
The nurse is on vacation this week. Dr. Engelhard will call you regarding your nausea medication; he also agrees that you should go to the ER. Please call your uncle regarding transport.
Best,
Dr. Soma
The nurse is on vacation this week. Dr. Engelhard will call you regarding your nausea medication; he also agrees that you should go to the ER. Please call your uncle regarding transport.
Best,
Dr. Soma
----
Jean, I would like for you to come in and obtain an MRI of the
brain. It is best if you got it soon and through the ER (and they can take care
of the Vicodin Rx). Can you do this soon? I am okay with Depakote.
John L. Villano, M.D., Ph.D
Director of Medical Neuro-Oncology,
Director of Medical Neuro-Oncology,
From: Jean Mathew
[mailto:jean.mathew@gmail.com]
Sent: Sunday, January 01, 2012 11:49 AM
To: John L Villano Cc: vmaynal@uic.edu; 'Morris, Kelly (PSJMC)'; jgolick@uic.edu
Subject: Regarding headaches and update...
Sent: Sunday, January 01, 2012 11:49 AM
To: John L Villano Cc: vmaynal@uic.edu; 'Morris, Kelly (PSJMC)'; jgolick@uic.edu
Subject: Regarding headaches and update...
Hi
Dr. Villano,
I
have had 2 days where I have had severe headache at my left frontal forehead
area with nausea. The headaches disappear when I take the Vicodin 500mg. On
1/30/11 at night I took 1 vicodin and went to sleep and by morning it was
better. On 1/31/11 night, I took another Vicodin and the headache got better.
Again this morning I had another headache and took another vicodin and I feel better now. Last
night I had muscle cramp on my right last 3 fingers and I took 0.5mg of Ativan
for that. I also has had itching on my face and head and I have been taking
loratadine tablet for the itching. I just want to know if it is alright for me
to continue taking the Vicodin for my headaches and if so, I need another
prescription for the Vicodin?
I
just wanted to update you on my medication changes. My neuro doctor Roy
Sucholeiki at Neurosciences Institute at CDH increased my Keppra dose to 1000mg
tablet 2 times daily and stopped my Lyrica tablets. On 12/22/11, I had an
appointment with Dr. Englehard and he gave me a prescription for Depakote ER
500mg 1 tablet 2 times daily, but he only wants me to take it if you approve it
based on the condition of my liver. ( In 2008, I remember you had put me on
Depakote and then stopped it because of something with my liver condition. At
that time, you changed my medication to Keppra.) Please let me know what I
should do regarding the Depakote.
I
had 2 cycles of Avastin so far, and I think I will need to have a MRI after 2
more cycles of the Avastin. There has been some delay with the treatments (TTF)
at Novocure and I think my MRI's will be delayed also. Can you give me a order
for an MRI so I can do it after 2 more cycle of the Avastin? If I wait for
Novocure, my MRI will be delayed.
Can
you updated me on your new email and phone number?
Thanks,Jean
From:
Mihailovic, Marko [mailto:miha@uic.edu]
Sent:
Tuesday, January 03, 2012 9:22 PM
To:
Jean Mathew; nbtorres@uic.edu; Watson, Karriem
Subject:
RE: Phone : 630 363 4743
Hi
Jean,
Yes,
I have heard from Dr. E. that you are a good candidate for the NovoTTF
commercial use. Therefore, Dr. E needs to see you again at his clinic.
Nancy,
please
schedule an appointment w/Dr. E for pt, Jean Mathew, per Dr. Engelhard's
request.
Thank
you in advance,
Marko
Ref:-
From: Neema Cheriyath
[mailto:goodneema@gmail.com]
Sent: Saturday, February 04, 2012 10:06
To: Jean Mathew
Cc: mvmathew@gmail.com
Subject: Re: FW: What for 911 - me too .... Seizures (SUDEP )
Sent: Saturday, February 04, 2012 10:06
To: Jean Mathew
Cc: mvmathew@gmail.com
Subject: Re: FW: What for 911 - me too .... Seizures (SUDEP )
Hi Jean,
Was talking to acha and amma that we had a talk last day.
Acha had discussed something about sudep sometime before with our cousin sethu
chechi in US. Got to know some info about trained dogs in US, who could be of
help in such a situation. Not sure if the below link could be of use to you.
Anyways can u please take a look?
Neema
----
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